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Author: Artemisia

Charlotte Bröcker, Germany

Charlotte Bröcker, Germany

I took up photography when I was 18 and after I finished school, I moved to Cambridge, England and completed a degree in Photo and Digital Media. After 5 years in Cambridge, I moved to Berlin in 2003. I worked in several different jobs, started another Degree in English and Philosophy at the Humboldt University, Berlin and became a mother of two incredible boys who turned my life upside down.

Being a parent is the hardest, scariest, but also the most amazing thing that happened to me. The first few years, I tried to do everything perfect and I didn’t have much time to enjoy the good moments, because I spent so much time feeling guilty, worried and exhausted. My daydream space was taken over by dark worry spirals and I wanted to come out of my head and connect to the world again. The camera was always the medium for me to connect my inner world to the outside, it makes me feel safe.

My younger son was born with a physical disability called “Arthrogryposis Multiplex Congenitas”, his older brother was diagnosed as autistic when he was 6 (he’s is 10 now). Before his diagnosis, I never thought much about autism. I had the same clichéd ideas about it as most people and though things like “He can’t be autistic, because he yes friends…”. It took me a few months to accept the diagnosis, another few months and a lot of reading and research to be happy about it, and it wasn’t until I read Aspergirls and some others book and blogs about women on the spectrum that everything started falling into place and making sense again.

During the whole process, I used my camera a lot to capture my feelings and connect. I watched my boys growing up with my camera – because watching my children often throws my right back into my own childhood memories.

My project: “Interaction Patterns – Atypical Childhood”, is an ongoing reflection on childhood and my role as a parent, how we interact, and how the way we see ourselves shifts.

Charlotte has an exhibition currently at Welzhaus, Klinikstraße 6, 97070 Würzburg, Germany. She spoke about the project there on September 27. Welzhaus is part of the University in Würzburg. They have changing exhibitions going over 6 months so her work will be there for some time.

Website: www.charlottebroecker.de

Facebook: Charlie Brocker Photography

Instagram: @charliebrocker

My Gender is Jeanette - by Jeanette Purkis

My Gender is Jeanette - by Jeanette Purkis

‘I am not a she but a me’ - Coming out as a non-binary in the autism community

When I was a kid the most frequent ‘insult’ school bullies would level at me was ‘Are you a boy or a girl?’ This confused me, firstly because I didn’t see why that was supposed to be an insult and secondly because clearly I was neither. I have always known on some level that the two options for gender that I was aware of did not apply well to me. I was expected to be female and I knew there were various qualities and activities which were supposed to come with femininity but I didn’t feel any wish to do those things. Any relative who gave me a doll for Christmas would be disappointed when I either left it in the box and ignored it or on one occasion did some kind of unintended conceptual artwork by writing interesting words on its creepy plastic head. For many years into adulthood I firmly believed that all other women felt the same way as me and that those who wore stiletto heels and makeup must have somehow been brainwashed into doing so!

I have always felt that I occupy the space of a different gender – something I often thought of as a third gender which doesn’t fit neatly into the traditional ‘male’ or ‘female’ sorts of expression. My choices in dress sense and hair and other external expressions of gender, change every few years. I spent my teens and early twenties with shaved short hair, wearing check shirts and work-boots. Bus drivers used to call me ‘mate’. In the last few years my outward expression has been about colour and sparkle and quirkiness. My best ‘being me’ clothes are turn-up jeans, art, literature or Pride-themed t-shirts and sneakers with big jewellery and a coloured wig or a hat - a beanie in winter and a baseball cap in summer. Even with these quite dramatic changes in how I express my sense of my own gender I am not at all questioning or unsure of my identity. I know exactly who I am. My gender is ‘Jeanette’.

Despite knowing who I am, it took me until earlier this year to ‘come out’ as what I now understand to be non-binary gender. I have received some great support and encouragement from many of my autistic friends, particularly those who are also part of the trans and gender diverse community. A few months ago I announced my wish to be referred to as they / them rather than she / her. Despite having had female gendered pronouns all my life - 43 years - they never really sat comfortably in my mind. I am not a she, I am a me.

I posted this on social media shortly after coming out: I recently publicly affirmed and declared that I identify as being of non-binary gender and that I prefer being referred to as ‘them / they’ rather than as ‘she / her.’ It has been incredibly liberating and opening new possibilities to my understanding of myself and others. It makes me feel sort of young, like I am discovering more about myself than I knew was there. I am wondering why it took me so long to get to this point of identifying and understanding. There is a lot of me wandering contented and happy through life tempered by occasional worry and uncertainty.

Because I have known that I am non-binary for a while, I thought coming out would be almost like a formality. I didn’t anticipate what it would mean. Since then my identity has blossomed into something I didn’t know was there. I feel like I have walked into the light for the first time and seen everything in its true and beautiful form.

It hasn’t all been pleasant. One of my friends who is trans told me shortly after I came out ‘You will find out who is your friend and who isn’t and you will be surprised.’ She was absolutely right. I have discovered allies amongst some of those who I was most afraid would ostracise me. Despite the vast majority of people being supportive or at least not bothered much one way or the other, I have also had some very upsetting trolling. Being trolled by a few notable individuals in the autism community was extremely hurtful and confusing. I still don’t understand why people who on the one hand are working towards inclusion, can at the same time be so bigoted and exclusionary. I have never had trouble respecting and welcoming others. Gender identity and sexuality have always been complete non-issues for me. Discovering that there are people whose view of me changed dramatically as soon as I formalised something which has been true all my life - my gender - I was very sad indeed. I was no different before I came out than I am now. I guess I don’t really understand bigotry. Thankfully so many of my friends and colleagues have been very welcoming and supportive.

I think that the best thing in terms of my autism advocacy work and my coming out has the the large and growing number of autistic people who follow me online who have started to question and understand their own gender identity after finding out about my journey. It appears that what I say about gender is relatable to other gender diverse autistic people. There are actually a huge number of us. Both anecdotally and in research evidence, autistic people have significantly higher rates of being gender diverse than our allistic peers.

I have never regretted coming out and doubt I ever will. It has been an absolute rebirth, a time of discovery and I am liking my unfolding identity. I feel so much myself and this seems to grow every day. Being ‘out’ is everything I could have hoped for and more. A friend said to me how lovely it was to see me growing into my identity and I know what she meant. I’m just starting to write the first chapter of the metaphorical book that is this part of my journey. I’m looking forward to seeing what the other chapters contain.

Website, blog and books

Website: www.jeanettepurkis.com

Blog: jeanettepurkis.wordpress.com

Latest book: The Parents’ Practical Guide to Resilience for Preteens and Teenagers on the Autism Spectrum (co-authored with Dr Emma Goodall) Jessica Kingsley Publishers 2018

Facebook page: ‘Jeanette Purkis Autism Books and Other Things’

Don’t travel like a Neurotypical…travel like an Aspie by Katie Oswald

Don’t travel like a Neurotypical…travel like an Aspie by Katie Oswald

A couple years ago I was chatting with a friend, telling her about the challenges and joys of my experiences living in different countries and cultures. After a few minutes, her expression turned to one of awe and admiration and she said, “Wow! I wish I could travel like you do. I couldn’t handle it.”This got me thinking about why I can travel and why others feel they can’t. Sure, in some cases it is lack of time and money. But not always. I isolated the cases that were not about those constraints and ran them back and forth in my mind from every possible angle. Was it that they never tried to travel and just assume they can’t handle it? Sometimes, but again, not always. I remained with a handful of cases where an Aspie has traveled one or more times, knows they would love to be able to travel more, but simply feels it will be too overwhelming.

Now, as someone who dreads leaving the house for things as simple as grocery shopping or coffee with a friend, I can relate to these feelings. When I’m not traveling, I am comfortable leaving the house a few times a week for a few hours at a time. I am not special or a superwoman, so I still couldn’t quite put my finger on why I could manage to travel to 17 countries on 6 continents while fellow Aspies were terrified at the very idea.

Then one day it hit me.

I don’t travel like a neurotypical. I travel like an Aspie!

The problem I found is that neurotypical travel often doesn’t work for Aspies, so Aspies think travel is an unattainable goal. The media and travel blogs tell us that travel has to be exciting, nonstop action, going to dance clubs and staying in hostel dorm rooms to meet other travelers. But it doesn’t have to be all of those things. You can find your own travel style and it can be whatever you want it to be.

Travel can be enjoyable for Aspies!

My first experience abroad was in Russia. I quickly realized that I had almost no control over what was happening, which made me unbearably anxious. The only thing that kept me calm enough to avoid a meltdown was the vodka and strong Russian beer. I expected to endure this heightened anxiety for the entire trip. Then on day 2 something inexplicable happened.

I was having dinner with fellow students on the patio of a nice restaurant, watching the sun dip lower and lower on the horizon. Suddenly a calm feeling came over me and filled my entire body. I realized that it didn’t matter that I couldn’t control everything. I could accept the times when things were out of my control, let life happen, and enjoy my time in Russia. I knew if I didn’t, I would have a miserable experience.

Of course, I experienced intense anxiety and the occasional meltdown during those few months, but I enjoyed it enough to know that I wanted to travel more. A lot more!

After that trip I did a home stay with a Russian family, took a ship across the Drake Passage to Antarctica, and lived for two years in a remote village in Uganda. During all of these trips, there were moments of intense panic, anxiety, nausea, and the occasional meltdown. But I would do it all again. Travel made me a stronger person, a more open and accepting person, and it has changed my world view in ways that were unimaginable.

So how can you make travel work for you? I learned by trial and error, but you have access to what I’ve learned along the way. Here are some primary factors to consider.

Where will you go?

Go somewhere relaxing and not overwhelming, especially if you are a first time traveler. Go slow! You don’t have to do nonstop site seeing and you can take whole days off if you want. I do! I never do any activities the day of my flight. I take that day to get settled in and rested up from the flight. And I often take a half or whole day off to stay inside and read if I am traveling for more than four days.

Study maps ahead of time. If you have a day of activities planned and you study your route in detail the night before, you can identify “safe places” along your route. Many cities have parks and nature areas in the midst of the urban chaos that you can take advantage of to prevent or recover from a meltdown.

Time and Money

We all have constraints on how we can travel. I have a lot of time and not much money because I work for myself, so I travel on a budget. You might have a good full-time job and have little time and more money. We won’t cover budgeting in this article, but just know that you shouldn’t sacrifice personal comfort due to these constraints.

For example, if you have a lot of time and not much money, think twice before you decide to spend two weeks in a hostel dorm room. You may be better off spending three days in a nice hotel or a week in a budget hotel.

Transportation

You don’t have to fly or drive when you travel if you don’t want to. Trains are a very relaxing option and are available in most countries around the world and you can travel anywhere in the world by ship. There are cruises that take you across oceans and you can book a room on a freight ship, too.

Road trips allow you to go at your own pace if you do like to drive. I don’t like to drive, but still enjoy the occasional road trip to small and medium sized cities. You can take country roads when possible and stop when you feel like it, without feeling rushed. When you get to your destination, you don’t have to worry about getting around on public transportation.

Lodging and Accommodation

There are countless websites for booking the right hotel, like booking.com, Trivago, hotels.com, and many others.

For those of us on a budget, there are lots of options, too! My personal favorite is TrustedHousesitters. If you love animals, this is a great option. You can stay for free at someone’s home and take care of their pets while they are out of town.

There are also plenty of sharing sites that allow you to camp in someone’s yard for a small fee, rent an RV for less than $10 a day, or sleep on someone’s couch for free. A private room on Airbnb can still be an affordable option in some cases, and there are plenty of other interesting options like farm stays, monasteries, and capsule hotels.

Safety

By far, the most important part of travel for Aspies (or anyone, really) is safety. As Aspies, we have unique challenges. Doing everything you can to prevent meltdowns is key and this means being in tune with your body and remembering to pay attention for triggers. When it’s not possible to prevent a meltdown, there are still things you can do to improve the outcome.

Learn about the culture before you go, specifically how they view and understand autism. Store embassy and emergency numbers in your phone. If you have a meltdown, you may need to call someone for support. Carry a card or document that explains autism and has emergency contact numbers in case you become nonverbal and need someone to make a phone call on your behalf. Make sure you have copies in English and any other languages spoken in the countries where you will be traveling. I have had public meltdowns in countries that have no understanding of autism and I didn’t need these, but it’s good to be prepared.

These are the basics to start thinking about as you consider your next trip. Over the next year, I hope to interview and feature autism-friendly travel companies on the Autistic Travel Coach and make presentations to other travel companies on the importance of becoming autism friendly. I plan to feature more of this content in addition to the existing travel content.

I hope you will join me on this adventure and have plenty of your own, as well! If you would like to have a free 30-minute coaching call, or just chat, please contact me at AutisticTravelCoach@gmail.com. I would love to hear from you about what type of content you would like to see on the blog at https://autistictravelcoach.com

 

Holly Priddis - Australia

Holly Priddis - Australia

As long as I can remember I have always been immersed in art in some way. As a teenager I started drawing and writing and have spent time throughout my life experimenting and enjoying many artistic forms of expression such as photography, knitting and crochet, and most recently painting. I am a self-taught artist and started to really explore painting at the end of 2017. This was a challenging time as I had been diagnosed with Aspergers in June 2017 at the age of 43 and this diagnosis completely turned my world around. Although I had answers to some of my unusual behaviours and quirky likes and dislikes, I found myself completely lost and unsure of who I was anymore. Alongside my Autism diagnosis I have experienced bouts of severe anxiety and I find art an essential component of my recovery. During an episode of Autistic Burnout when I find I struggle to eat, sleep or even speak, art is always there as a way to focus and calm down somewhat when it feels like my brain is trying to spiral and spin outside of my body.

I use watercolour as my preferred medium. I mostly use Winsor and Newton watercolours and Liquitex paint pens on 100% cotton cold press paper by Fabriano. I love the way watercolour has a life of its own and I find that the lines and flow of the paint give my spiralling brain something to hold on to. I am also a mother, midwife and midwifery lecturer so my art often incorporates anatomy, pregnancy and early motherhood. I hope to have a gallery display in the future, however for now I enjoy selling my art to those who it resonates with.

Insta: @miss_fairypants
FB: Holly Priddis Photography and Art

Yvonne Moore - Scotland

Yvonne Moore - Scotland

I’m a self employed mixed media artist from Aberdeen, Scotland but based in rural Dumfries for the past 11 years. Working with various mediums (acrylics, pastels, watercolours, charcoal, stained glass, mosaic) means producing an array of portraits, wildlife or iconic scenic images, and project based workshops in mosaics etc.

Have been involved in several mixed media local artists exhibitions here but am now hosting my solo exhibition ‘Reflections in Time’ 1-31st August at ‘A the Airts Gallery’ in Sanquhar, Dumfries and Galloway.

The aim is to exhibit my most popular, favourite artworks for the past decade. I aim to incorporate lifelong influences into my art from both Aberdeen and Dumfries regions during the exhibition along with a visual display which I shall be setting up which I hope visitors will enjoy. Will be a range of original artworks, mounted prints, gift cards and postcards based on my artwork for sale in the gallery shop and retail art outlets in the region or my fb art page too. I’m filming the exhibition for those who can’t attend and for inclusion into the Artists with Autism/ Aspergers art exhibition in Christchurch New Zealand for later in 2018. Find me at fb.me/artyaspieyvonne or http://artbyyvonne.wordpress.com

Youtube - Artemisia’s Best, Recent, and Faves

Youtube - Artemisia’s Best, Recent, and Faves

This playlist contains 1. a smart review of Sex and the Single Aspie, 2. Why I wrote it, 3. me reading it, 4. Sensory Issues 5. The Real Vagina Monologues (comedy sketch) 6. a Song or two shot in Rome and Paris.

Best and Recent

If playlist does not work automatically go to my channel: My Youtube Channel has music, comedy and of course, Aspergers!

Depression is a Barrier to Power

Depression is a Barrier to Power

The quality of the video is not so great and the audio is a little bit difficult to heare but I like the content of this video so much I have kept it. If you struggle with depression and disempowerment this might help you.


 

 

Hibernation After Recreation

Hibernation After Recreation

We all do it! Socialise too much, burnout, suffer the backlash and blame ourselves. There is a way to hibernate after putting ourselves out there that’s gonna feel empowering and nurturing. With all the travelling and performing that I do this advice is stuff I have to tell myself all the time.